
Friday, March 11, 2011
5 iPads for Autism

Wednesday, January 26, 2011
My Morning Rant

I was on Facebook this morning and started to write a morning greeting in response to a post by a local autism center,"
"The latest British Medical Journal paper about autism and vaccines, which provides evidence that the initial report linking autism and vaccines was fraudulent, and the media coverage that ensued, miss an important point…"
...and since my thoughts wouldn't fit the character limit... I brought it here.
Firstly, I was stunned to see an autism school post something so controversial. I do think their job should be education, intervention and advocacy... and that their opinions about the autism/vaccinate debate should be removed from their public statements. (... So I thought that this post was risky.)
But, they are right about questioning the media's coverage ... because, of course, we know that the media is a great place to get unbiased information!!
Secondly, (here I go…) I think Wakefield is a scapegoat!! (Do you know he had nothing to do with our pre-autism decision not to vaccinate?) Yes, that is right we made this decision before autism was in our lives... And in case you are thinking, “See, you didn’t vaccinate and your child still has autism!” Let me clarify, that doesn't 'prove' anything... I often wonder why no one is researching maternal vaccine history... For instance, RhoGam ??
I know too many parents who have reported regressive autism, not to question it’s etiology. I do not think autism is ‘caused’ just by vaccines, and in some cases… that is precisely what I think. But, I also think genetics, environmental toxins take a role as well…
Moving on to what Really pushed my buttons… this particular post went on to quote Autism Speaks,
"Until science discovers the causes of autism and explains its dramatic increase, parents will continue to reach their own conclusions and desperately try a wide range of treatments, whether there is evidence to support them or not. The answer is not to look to the past and look for blame, but rather to look to the future. We need increased research financing directed toward rigorous science that can provide the answers that parents are looking for and deserve. Until this happens, we will continue to wallow in controversy, and people with autism and families will continue to struggle with autism on their own."
Geraldine Dawson
Chief Science Officer, Autism Speaks
New York, Jan. 13, 2011
Editorial in New York TImes by the Chief Science Officer of Autism Speaks
Let me be clear Autism Speaks does not speak for myself OR my child! I have many questions, but mostly where is all this money they raise??? ... and why (or how) should we take YOUR research seriously while you are insulting parents across the world with statements like this... how can we expect unbiased research ? We can't!
In this statement you are indirectly (no, directly) are asking for more money to fund research?? Does anyone else see this statement as exploitation?? In the first two sentences, parental desperation is address… then whap… they put their hand out!
What about the 6 digits your executives are making? Do you know many autism families have lost their homes, have gone down to one income, and are scrapping by to do what they can with what they have for their children while you sit in your fancy upstate New York office getting rich off of us?
I don't need Autism Speaks to tell me that my child is 'broken' or that my marriage is going to end in divorce or that autism is entity stalking my family... I have found a way past her label, the stereotypes, the fears... but that doesn't mean I sit back and quietly listen to this crap... stop exploiting our kids, adult friends and loved ones.
Stop paying your executives 6 digits! Stop spending more ((a lot more)) on travel and office expenses than what you contribute to autism research and family services. Then maybe you don't have to recruit parents on the front line to go out to collect donations and walk... when they should be focusing their attention on their child.
Finally, take the dollar sign of my child's head!!
Wednesday, December 29, 2010
Donation Ideas

Friday, November 19, 2010
My Soap Box: Don't Pretend to Care via Your Product or Service
Wednesday, July 14, 2010
MAMAPALOOZA COLUMBUS IS BECOMING THE BUZZ OF THE CITY

Mamapalooza Columbus is a branch of Mamapalooza Inc., a mom-owned and operated mother advocacy organization founded by Joy Rose of New York City. Mamapalooza Columbus is connecting local women, mothers and families through music, expressive arts, activism and education for cultural, economic and social awareness. This past May marks the fourth anniversary of Mamapalooza Columbus which has not only created a buzz, but inspired a Mamapalooza Committee of Coordinators, a Back to School Event and even one of the Mamas being showcased on Mamapalooza TV and the Museum of Motherhood.
Columbus, Ohio September, 2010 – Mamapalooza Inc.'s ongoing mission is to create authentic, inspirational, large-scale experiences that will reach millions. Mamapalooza Columbus is energetically helping this mission come to fruition.
It was Mamapalooza Columbus 2010 that inspired four Mothers to unite for the empowerment of the women, mothers and families of Columbus, Ohio. Eileen Clary (HandyGirl!) is leading this committee and is credited with starting the action in Columbus as the Regional Coordinator since 2006. Vanessa Abel (Earth Flutter), Joanie Calem (Sing Along and Dance Along) and Susan Richardson (Exceptional Beyond Labels) have joined Eileen as a Committee of Coordinators and have already begun the planning stages for a Back to School event this fall.
This Committee of Coordinators is hoping more mothers in the city of Columbus will join in the fun with innovative activities that impact the women, mothers and families of Columbus. If you have a product or service that focuses on creativity, fun, health, wellness, financial education, expressive arts or if you’re a Mom-preneur, Mamapalooza Columbus wants you to buzz in too! Some of the other folks involved with Mamapalooza Columbus 2010 were Randi Mockensturm, Tenara & Candice, 7th House Moon, Majestic Belly Dancing, Elliot 12Trees, Leslie Zak, Nancy Miller/Scentsy, Cynthia Minnich/Clearartview, On The Spot Mobile Massage & Bodywork, Columbus Acupuncture & Wellness Center, and Global Gallery. Thank YOU for making Mamapalooza Columbus 2010 the buzz of the city!
Alexis Chapman, Independent Contractor for M.O.M. (Museum of Motherhood), came out to personally support Mamapalooza Columbus 2010. M.O.M. is a sister organization to Mamapalooza Inc., devoted to educating the world about the contributions of mothers both historically and in contemporary culture. Alexis connected with the Columbus mothers and stayed to enjoy some of the Moms that were rocking the stage! Later she connected with one of the committee coordinators, Susan Richardson, and asked her to be a guest blogger on M.O.M. and to be interviewed on Mamapalooza TV.

Sunday, July 4, 2010
A Priceless Moment & Life Lessons Among Monsters


Friday, June 18, 2010
Cell Phones: Luxury or Need?

Saturday, June 5, 2010
Oil Spill, Meditation and Eradication
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The oil spill in the Gulf of Mexico is going to impact our planet, children and grandchildren, ecology, economy, etc. for centuries to come... that is if we survive it at all!! I watch videos, view pictures and read story after story; and my heart aches for our planet and mankind. I can’t help but worry about what devastation this will behind. I pray, but I am not sure that is enough.
I try not to focus on the obvious detriment of the situation. I firmly believe in the law of attraction and know my thoughts can and do create my reality. So, I try to meditate and focus on purified waters, a healthy marine habitat and a repaired oil tank. I figure that if the scientists and engineers who are armed with technology cannot fix the massive oil rig tank, then surely our thoughts can.
Well, I have to admit that is even hard for me to ascertain. I try, but I keep returning to thoughts of destruction and greed. I cannot help but to beg the power and money hungry individuals in charge to get off their duff and do something about this before it kills not only the planet, but the people who inhabit her too!! Stop defending Big Oil and take action!!
I feel like my pleas are met on deaf ears. I contemplate that if the powers to be can make vulgar statements about the oil spill and not take proper action to remedy the situation, and then it is very possible that the same greedy bastards could be making vulgar statements to discredit concerned parents and deny vaccine injury while continuing to pump that toxicity into our bodies? Sadly, this makes me feel validated. Sadly, this is probably close to the truth.
We live in a corrupt society where money and power make us do things that are incomprehensible. We turn the cheek when it doesn’t directly affect us or when we are seemingly removed. But, I have to say that we are not removed from either of these scenarios. Our children are being vaccine damaged as well as poisoned by toxins and pesticides in their foods as well as in their toys. Just this week alone 2 children’s items were recalled for containing cadmium… Miley Cyrus brand Jewelry at Walmart and Shrek glassware at Mc Donald’s.
And yet, we think it to be so farfetched that vaccines might contain harmful ingredients? Another story surfaced this week about a congressional committee that is investigating what they are calling a ‘phantom recall’ on Johnson and Johnson division, Mc Neil’s, Motrin. Apparently, the company outsourced contractors to have individuals go into stores and buy the entire product on the shelf to prevent a nationwide recall.
There are some tainted business practices occurring and it is mankind that is paying. Of course, Sarah Palin would like to blame the ‘Radical Environmentalists’ for the recent Oil Spill, but we know better. It is a world full of greed and this too shall bite us in the ass. This spill will effect far more than the Gulf. It will affect the entire mother earth and her inhabitants. You know I think she will survive… but not without causalities. Mankind has been eradicated before, and we are not too far from it again. We are but a mere virus on her and her immune system is about to eliminate us.
I pray that I am wrong for our sake, for our children's sake, and for the sake of this planet that gives us life.
Saturday, February 13, 2010
Stoned and Unemployed
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Tuesday, September 8, 2009
ATTENTION FRANKLIN COUNTY, OHIO RESIDENTS AND RIDGEWOOD PARENTS!!

Tuesday, July 7, 2009
Searching for Biological Autism Answers: Dead End!

Even after the neurologist maintained that a chromosomal deletion was insignificant, he recommended we talk to the genetic department to get more information on the findings. We waited months with sleepless nights to get in to see him, finally we were there.
The intake personnel asked why we thought we were there to see the geneticist, "Our daughter is diagnosed with autism and the blood work showed a chromosomal deletion, dad has the same deletion, mom has a different one, and the neurologist thought we could learn more about this from the geneticist."
Without hesitation he replied, "You will learn that these deletions are insignificant and not related to the autism. And, although, we know that autism is a biological disorder not an environmental one, we do not see any evidence of genetic causation in your daughter’s case."
My mind started mulling over these words…
‘Biological disorder’….
‘Not environmental’….
‘Do not see any evidence’…
He proceeded to take a thorough 60 minute case history. As we discussed our family history, I started to relax; somehow having the medical model finally listen to our story seemed to be relief in and of itself. But then, we had to wait another 45 minutes before the geneticist came in to see us. At some point I said to my husband, "If there is no evidence of biological component here… why are they wasting our time?"
Both kids were restless, hungry, and ready to bolt as the door opened. "Hi, Mr. and Mrs. Richardson…. I am ‘Dr. Geneticist’…. why do you think you’re here today?" Again, I explained what I knew of the deletion and his reply shocked me, "Over 80% of the time I can look at a child’s profile and determine the cause of the autism. We don’t see any of those indications with your daughter’s case; however, even though we know that autism is biological, we haven’t been able to know precisely where it is coming from. We are doing continued research to determine how it is biological and which specific gene it resides on."
WHAT?!? How can the geneticist say that there is autism is 80% biological/genetic but not have scientific evidence where the ‘autism code’ resides?
I craved validation, "If you are not finding any biological component linked to my child’s condition, is it safe to say that her condition is related to environmental toxins?"
Prepare yourself for what we heard!
"Some individuals are blaming environmental factors. I have not seen enough evidence that indicates that this could be valid…. There is no link between autism and environmental toxins." He continued to discredit the alternative venues of treating autism like chelating, GFCF diets, and other DAN! Doctor protocols. He even went as far as to state, "Chelation is killing kids while the people recommending it are making gobs of money."
I couldn’t believe my ears, but then again, his science and research is funded through this paradigm (psst…. Guess who’s making gobs of money too?). But to outright attack it befuddled me. I admit I question medical efficacy, but I also invite debate so that we might learn more about both approaches. It is when they find unison that maybe, just maybe, we will begin to progress towards finding a cause and more importantly find a cure.
Many are making ‘gobs’ of money off our children’s deficits from both paradigms. But, right now, my reality is spent in the sleepless nights wondering how we are going to pay for the co-pays, huge deductible, and the portion of the bills that the insurance company hasn’t deemed medically necessary.
The thousands of dollars in bills that we have accrued in the past four months is money that could have been utilized in a much more productive manner. The inconclusive tests results, countless appointments where the physician told us we are already doing everything they’d recommend and the referrals to additional hospital/medical services have racked up a bill and wasted valuable time that could have been utilized towards the recovery of my daughter’s autism.
Monday, July 6, 2009
A Letter to President Obama:Autism Advocate Requests Your Attention

Dear Mr. President,
I can’t post-pone this letter any longer. There is a pestilence occurring among our children in America and we need your help!
My daughter was diagnosed with Autism Spectrum Disorder (ASD) last Halloween. Progress is slow, but steady. We do feel restricted in the process of addressing her needs due to the law not requiring the inclusion of autism on insurance policies, the narrow-mindedness of some deemed professionals in the industry, and the lack of financial backing.
Mr. President, many parents and professionals have differing opinions about how to address the needs of these children and what causes ASD. I am sure you are aware that this is a hot topic and tempers flare. I am not going to address the causation in this letter, but am going to acknowledge that I quietly (and often) wonder if the two injections of the RhoGam inoculations mandated on me during pregnancy caused our daughter’s disability.
I am going to also point out that since implementing the medical model during the past few months our medical bills have surpassed our personal budget. Unfortunately, I think that Autism has become an industry rather than an epidemic. It infuriates me that many are getting rich off of the woes of our children. But, this isn’t about me and the need to find someone to blame. I have made peace with our circumstance, and thank God that he entrusted me with this challenge. (He must have recognized something amazing within our family construct to bless this family with such an amazing journey.)
There are others I am most certain that have been called to action by a higher order as well. For instance, Angela Warner—a military mom of four (2 with ASD), is an inspiration to each of us on this journey. Her drive to alert you, Mr. President, and the mother of your children, Mrs. Obama, about this epidemic and how it is affecting our military families is inspirational.
Men and women who have committed their lives to protecting ours, are fighting an even bigger battle and dealing with even greater grievances on their home fronts as well. I am not going to pretend to understand what is like to be a military family and face autism, this you can learn by accepting her invitation to meet in early October. Until then, you can read more about her bravery and endeavors at http://www.autismsalutes.com/.
Age of Autism, a daily web newspaper of the autism epidemic, recognizes Angela as an Air Force spouse, mother, and advocate for our children. Today, I am asking that you encourage Michelle Obama to meet with Angela to have a discussion about what American families are going through.
It won’t be long before the 1 out of 150 kids with ASD become of age… that will bring its own set of challenges. If we don’t act now, more money and resources will be required to meet the activities of daily living for this fast growing population. I encourage you to help the children of today for a better future tomorrow. I, personally, have signed an open letter to you on the web encouraging you to look into the environmental factors that could be contributing to this debilitating disorder.
Thank you for your action!
Susan Richardson
Mother, Wife & Autism Advocate
Friday, June 12, 2009
Ohio Votes For Autism Inclusion: Coverage for ASD!

So as I neared the post office, I was listening to one man’s opinion, and a strong one at that, about how wrong Obama is with his Health Care Reform stance. He was making good arguments, but the chatter in my head pleaded for someone to recognize that regardless of what we did about Health Care Reform, we had to do something. What we are doing isn’t working, am I not the only one who sees this?
I had fuel added to my fire about the insurance game when my daughter, whom is diagnosed with Autism Spectrum Disorder, had a claim denied when she was 3 years old. She wasn’t speaking at all at the time and her medical doctor kept saying, “Well, some kids just don’t talk until they are 6.” But, I kept pleading something is wrong. She won’t even look at me when I call her name, she doesn’t budge when we make loud noises behind her, something is wrong with my baby… please do something, help her!
After a lot of persistence, we got doctor orders to rule out hearing loss as the first step. I was relieved and anxious that we would finally see if this was the culprit for her unresponsiveness and lack of speech. The tests came back negative and she was labeled with the diagnosis of “Speech Delay”. Whew, we were relieved that it wasn’t hearing loss, but...
The insurance company said they would not pay for the tests based on the diagnosis. I tried to calmly explain that we thought she was deaf and we were trying to rule that out… I think that was the first time I truly experienced rage. Here I had this non-verbal 3 year old who was non-responsive to noise, and I was being told it was not medically necessary to check her hearing. The insurance rep even told me that if she had had speech previously and lost it, they would have paid for the testing. See, insurance companies will pay for rehabilitative services, but not habilitative services.
This was insane! I just wanted to help my child, and even though I paid my high premiums each and every month, they weren’t going to help my little girl. Didn’t they understand that the quicker she got help, the less it would cost down the road?
But, yesterday during a commercial break, I started to whoop and holler. I am sure the old woman in the car next to me thought I belonged to the Looney Bin, but I couldn’t contain myself. I was animated, excited, and wanted to express myself.
“I just don’t understand how they get away with it. Why does the law let health insurance companies discriminate against children with autism?”
I couldn’t believe my ears… OH MY GOOD GOD had listened to my pleas!!
“Families are going broke paying for medical services their children desperately need.Cancer is covered. Diabetes is covered. But not autism – even though autism has become more common than most childhood ailments combined.”
Disbelief, Adrenaline, Hope burst through my essence… Something I have personally ranting on about for the past three years was on conservative radio for everyone to hear. This was a monumental moment and I was praising God as I heard the words sponsored by Autism Speaks encouraging Ohioans to call Ohio House Speaker Armond Budish to advocate for our children.
“Speaker of the House Armond Budish has led the effort to end the terrible discrimination against people with autism. The Speaker hopes to leave a legacy of care for all of those who suffer with autism.”
Our children ARE discriminated against, and it is about time the world knew about it!!
“Please call Speaker Budish today and express your support as he defends his autism insurance reform provision in the budget negotiations with the Senate. Call Speaker Budish at (800) 282-0253… that’s (800) 282-0253.”
I called my husband before the commercial was over; he thought we had won the lotto by the way I greeted him. You know, I would take this bill passing over the lotto any day. Money is controlled by those with political power, but my daughter getting the care she needs, the care she deserves has far more value.
Sometimes, I feel disbelief that this is even a topic of negotiation; 1 out of 150 children experience ASD and we have to negotiate whether or not the treatments that run in the tens of thousands, the tests that have comparable price tags, are in the state budget?
“Now is the critical moment for the people of Ohio to speak up in support of individuals with autism and their families,” said Elizabeth Emken, Autism Speaks Vice President of Government Relations. “We urge all Ohioans to call Speaker Budish, a true champion for the autism community, and voice their support for his effort to end insurers’ blatant discrimination against children with autism. Ohio is closer than ever before to joining the growing number of states that have passed legislation serving to right this terrible wrong.”
Don’t hesitate call Speaker Budish today (800) 282-0253!!
Summary of Ohio Autism Insurance Reform Bill:
House Bill 8 - Sponsored by Representative Ted Celeste (D-24) and Representative Nancy Garland (D-20).
Requires private health insurance companies to provide coverage for the diagnosis and treatment of autism spectrum disorder.
Coverage of treatments will be provided when prescribed, provided, or ordered for an individual diagnosed with autism by a licensed physician or a licensed psychologist who determines the care to be medically necessary.
The bill includes coverage of the following treatments: Diagnosis, Habilitative or rehabilitative care, Pharmacy care, Psychiatric care, Psychological care, Therapeutic care, counseling services, and Applied Behavior Analysis (ABA).
The bill defines "medically necessary" as a services that is based upon evidence; is prescribed, provided, or ordered by a health care professional licensed or certified under Ohio law to prescribe, provide or order autism-related services in accordance with accepted standards of practice; and will or is reasonably expected to do any of the following: prevent the onset of an illness, condition, injury, or disability; reduce or ameliorate the physical, mental, or developmental effects of an illness, condition, injury, or disability; or assist to achieve or maintain maximum functional capacity in performing daily activities, taking into account both the functional capacity of the individual and the functional capacities that are appropriate for individuals of the same age.
The bill applies only to fully-funded individual and group health plans and multi employer welfare arrangements governed by state law.