Showing posts with label Economy. Show all posts
Showing posts with label Economy. Show all posts

Friday, March 11, 2011

5 iPads for Autism


I have a brilliant idea!!

I want to get 5 iPads into the hands of non/pre-verbal autistic children... and more if I can.

How?


Well, let me back up a tiny bit and tell you were I got the idea... It stemmed from my frustration with the system. I was using my blog as a rant... aka cheap therapy!! But as I typed those words, I started to get this idea... let's do a fundraiser to raise the funds for an iPad for Sahara.

But, I am not a self-serving person... so I started to think bigger, let's ask for more donations than what we personally need. Let's get enough to fund 5 additional iPads for other Autistics... Imagine the empowerment you would create in those lives!!

Hence the birth of the Sahara's Voice fundraiser.

Well, we posted the fundraiser 5 days ago and have raised $162 so far... while that is awesome!!! I want to keep it rolling.... please share this page with everyone you know... let's show the world what it means to pay it forward!!

Please remember a bunch of little things can add up to be a huge thing!!

If you have a company, consider donating in the company's name. The company will be acknowleged on our blog, twitter, facebook and in press releases.

Here are some links of interest:







Wednesday, January 26, 2011

My Morning Rant

I was on Facebook this morning and started to write a morning greeting in response to a post by a local autism center,"

"The latest British Medical Journal paper about autism and vaccines, which provides evidence that the initial report linking autism and vaccines was fraudulent, and the media coverage that ensued, miss an important point…"

...and since my thoughts wouldn't fit the character limit... I brought it here.

Firstly, I was stunned to see an autism school post something so controversial. I do think their job should be education, intervention and advocacy... and that their opinions about the autism/vaccinate debate should be removed from their public statements. (... So I thought that this post was risky.)

But, they are right about questioning the media's coverage ... because, of course, we know that the media is a great place to get unbiased information!!

Secondly, (here I go…) I think Wakefield is a scapegoat!! (Do you know he had nothing to do with our pre-autism decision not to vaccinate?) Yes, that is right we made this decision before autism was in our lives... And in case you are thinking, “See, you didn’t vaccinate and your child still has autism!” Let me clarify, that doesn't 'prove' anything... I often wonder why no one is researching maternal vaccine history... For instance, RhoGam ??

I know too many parents who have reported regressive autism, not to question it’s etiology. I do not think autism is ‘caused’ just by vaccines, and in some cases… that is precisely what I think. But, I also think genetics, environmental toxins take a role as well…

Moving on to what Really pushed my buttons… this particular post went on to quote Autism Speaks,

"Until science discovers the causes of autism and explains its dramatic increase, parents will continue to reach their own conclusions and desperately try a wide range of treatments, whether there is evidence to support them or not. The answer is not to look to the past and look for blame, but rather to look to the future. We need increased research financing directed toward rigorous science that can provide the answers that parents are looking for and deserve. Until this happens, we will continue to wallow in controversy, and people with autism and families will continue to struggle with autism on their own."

Geraldine Dawson
Chief Science Officer, Autism Speaks

New York, Jan. 13, 2011

Editorial in New York TImes by the Chief Science Officer of Autism Speaks

Let me be clear Autism Speaks does not speak for myself OR my child! I have many questions, but mostly where is all this money they raise??? ... and why (or how) should we take YOUR research seriously while you are insulting parents across the world with statements like this... how can we expect unbiased research ? We can't!

In this statement you are indirectly (no, directly) are asking for more money to fund research?? Does anyone else see this statement as exploitation?? In the first two sentences, parental desperation is address… then whap… they put their hand out!

What about the 6 digits your executives are making? Do you know many autism families have lost their homes, have gone down to one income, and are scrapping by to do what they can with what they have for their children while you sit in your fancy upstate New York office getting rich off of us?

I don't need Autism Speaks to tell me that my child is 'broken' or that my marriage is going to end in divorce or that autism is entity stalking my family... I have found a way past her label, the stereotypes, the fears... but that doesn't mean I sit back and quietly listen to this crap... stop exploiting our kids, adult friends and loved ones.

Stop paying your executives 6 digits! Stop spending more ((a lot more)) on travel and office expenses than what you contribute to autism research and family services. Then maybe you don't have to recruit parents on the front line to go out to collect donations and walk... when they should be focusing their attention on their child.

Finally, take the dollar sign of my child's head!!




Let me conclude with this thought...

Whether you believe vaccinations is the trigger for your loved one's autism or whether you embrace nuero-diversity... let's unite to empower the global autism community. It doesn't have to be a heated debate of one side vs the other.

In fact, I have found common ground with both sides. I do believe pre-natal vaccines contributed to my child's condition, but I also accept that she is phenomenal.. autism or not. I will continue to support her and offer her the tools she needs to reduce her challenges. I have found blessings disguised as autism...

But, autism doesn't define who she is... she is Sahara Grace, a fantastic 6 year old exploding with possibilities.

As for Autism Speaks... shame on you for exploiting our community.

Wednesday, December 29, 2010

Donation Ideas


If you are considering giving to charity as this year ends... please consider local charities or ones that you know where the money is going.

Many people ask if I support Autism Speaks... I do not. For the same reasons I do not buy pink ribbons and walk walks... I don't know where the money trail goes... well, I have my suspicions, but that is not for this post.

WHO DO I SUPPORT?

I support AWN and NZ... With these two organizations, I KNOW where the money trail is and what they are specifically doing to impact our global community.

Autism Womens Network (AWN) supports females on the spectrum and your donation would go towards hosting workshops across the US to educate and empower families like mine.

This community of autistic women have welcomed me, as a NT mother, into their community with open arms... I have developed a vested interest in their work. My goal is to empower other mothers like myself and young girls like my daughter. That simple! To donate click here.

NZ (Numinous Zoe) is a non-denominational, Christ centered church that has offered local resources for me to personally work with the autism community through spiritual and energetic mentorship. Your donation would help continue not only my mission & spiritual growth, but would support outreach to many who may not otherwise afford this alternative mode of care for their families and children. To donate contact Nathan at nnorris@numinouszoe.org

TY to both of these non-profit organizations... your personal support this year to my family and the autism community has been immeasurable!!

Friday, November 19, 2010

My Soap Box: Don't Pretend to Care via Your Product or Service




The more I think about the HollyRod Holiday ipad giveaway the more annoyed I become... why are they putting such income limits on it ($35,000 for a single income and $50,000 for a two income family ~ that is not a lot of money in the world of special needs) and why does my SLP have to be in control of the giftcard ... so we don't qualify... that doesn't mean we can budget this tool that could make a HUGE SUBSTANTIAL difference in my child's life. Apparently, they don't understand the financial crisis in Autism Families.

Why is everything they say is essential so expensive... Biomedical case in point. It would cost me more than $500 to just get the appointment on the books for our local Bio-med doctor... for an appointment that is 12-18 months scheduled out... Yet, alone insurance won't touch the office visit, supplements, and other non-traditional therapies (the oxygen therapy intrigues me).

...Every one should be able to afford to get the care they deem necessary for their kids.

This is precisely why I offer substantial discounts to autism families with energy work... autism families cannot afford $60-$120 an hour for energy work... they can barely afford to feed their kids and pay for the co-pays for the traditional therapies... and unless you have been touched by autism there is no way you can understand this. I watch and listen... (I might burn bridges here) and I have seen countless energy workers trying to exploit this population... perhaps some are heart centered, but not all... I recently had one (a former mentor of mine) try to tell me the other day ... "she isn't autistic. She is on a spectrum, you should make an appointment with me to learn more. I could teach you a lot about 'THEM'!"

...Are you serious???

You went to one weekend course and you think you know more about the autism spectrum than I... who has lived it for the last 6 years? Do you not see the dark circles under my eyes... those are my battle wounds... I wear them with pride. I have countless hours of research at the university of google... and have witnessed countless pokes and prods on a little girl who couldn't comprehend why her mother was letting these strangers violate her space. I have hours logged in at the local lobby where I sit with other mothers (and fathers) and listen to their strategies. I spend every other minute of free time I have either in the library reading or on the world wide web talking to adults on the spectrum or other parents... I live, eat, sleep, breath Autism 24/7 !

Don't offend me!!

Nothing pushes my buttons more than seeing organizations, practitioners, doctors, pharmaceutics, authors, specialty merchandisers... (this list goes on and on!!!) ... that are trying to capitalize off of the challenges our children and adults on the spectrum have. And with the Holidays around the corner we will see more and more of this.


Okay, so maybe that was a soap box... sorry.

Wednesday, July 14, 2010

MAMAPALOOZA COLUMBUS IS BECOMING THE BUZZ OF THE CITY

Mamapalooza Columbus is a branch of Mamapalooza Inc., a mom-owned and operated mother advocacy organization founded by Joy Rose of New York City. Mamapalooza Columbus is connecting local women, mothers and families through music, expressive arts, activism and education for cultural, economic and social awareness. This past May marks the fourth anniversary of Mamapalooza Columbus which has not only created a buzz, but inspired a Mamapalooza Committee of Coordinators, a Back to School Event and even one of the Mamas being showcased on Mamapalooza TV and the Museum of Motherhood.




Columbus, Ohio September, 2010 – Mamapalooza Inc.'s ongoing mission is to create authentic, inspirational, large-scale experiences that will reach millions. Mamapalooza Columbus is energetically helping this mission come to fruition.

It was Mamapalooza Columbus 2010 that inspired four Mothers to unite for the empowerment of the women, mothers and families of Columbus, Ohio. Eileen Clary (HandyGirl!) is leading this committee and is credited with starting the action in Columbus as the Regional Coordinator since 2006. Vanessa Abel (Earth Flutter), Joanie Calem (Sing Along and Dance Along) and Susan Richardson (Exceptional Beyond Labels) have joined Eileen as a Committee of Coordinators and have already begun the planning stages for a Back to School event this fall.

This Committee of Coordinators is hoping more mothers in the city of Columbus will join in the fun with innovative activities that impact the women, mothers and families of Columbus. If you have a product or service that focuses on creativity, fun, health, wellness, financial education, expressive arts or if you’re a Mom-preneur, Mamapalooza Columbus wants you to buzz in too!

Some of the other folks involved with Mamapalooza Columbus 2010 were Randi Mockensturm, Tenara & Candice, 7th House Moon, Majestic Belly Dancing, Elliot 12Trees, Leslie Zak, Nancy Miller/Scentsy, Cynthia Minnich/Clearartview, On The Spot Mobile Massage & Bodywork, Columbus Acupuncture & Wellness Center, and Global Gallery. Thank YOU for making Mamapalooza Columbus 2010 the buzz of the city!

Alexis Chapman, Independent Contractor for M.O.M. (Museum of Motherhood), came out to personally support Mamapalooza Columbus 2010. M.O.M. is a sister organization to Mamapalooza Inc., devoted to educating the world about the contributions of mothers both historically and in contemporary culture. Alexis connected with the Columbus mothers and stayed to enjoy some of the Moms that were rocking the stage! Later she connected with one of the committee coordinators, Susan Richardson, and asked her to be a guest blogger on M.O.M. and to be interviewed on Mamapalooza TV.

Mamapalooza Columbus looks forward to showcasing more mothers and connecting them with Mamapalooza Inc., Museum of Motherhood, Mamapalooza TV and other venues to bring the much needed awareness about the impact of mothers on our community. As Mamapalooza Columbus gains momentum and builds a buzz in the city, they will be looking for reciprocal sponsors to become involved as well as the perfect spot to hold Mamapalooza Columbus 2011 in May. For additional information on Mamapalooza Columbus, contact Eileen Clary at e_motok@yahoo.com. You can also get more information on Mamapalooza Inc. at www.Mamapalooza.com.



Sunday, July 4, 2010

A Priceless Moment & Life Lessons Among Monsters










Movie Tickets... $9

Nachos n Cheese... $4.75

"1" Bottle of Water... $3.75

Bag of Pop Corn... $5.75

Raffle Ticket... $1

Pizza... $22

Game Room Tokens... $4

A Mother and Daughter Moment.... PRICELESS!!


I have been wanting to spend some one on one time with my oldest daughter. So, when her Daddy suggested I take her to see Eclipse I embraced the opportunity.

We had a great conversation on the way to the theater and were able to connect during the film. She tickled me pink when she leaned over to exclaim her appreciation for the scenery. Especially because she was oblivious to the passionate kiss taking place as she noticed the serenity of the ice capped mountains and falling snow. It made me appreciate not only her innocence but her obvious connection to nature's beauty!

You have to realize my daughter is not one to be enamored by the romanticism that this movie cradles. She does not have her head in the clouds of boys and fantasy... she does however love a good story full of action though (thanks to her father). I presume she was eagerly waiting for the fight seen the whole 2 hours evident by her subtle movement forward as the fight began.

Me? Well, I love a good romance... and how much more erotic can you get than to be torn between the ultimate bad guy (a vampire) and the ultimate nice guy (a werewolf)? The rawness pulls me in... maybe because my life is so far removed from this. Surprisingly, because I have never appreciated the mysticism of the vampire... even as a young child they terrified me. Perhaps that is why I like this version... they are not portrayed as the thirsty monsters that once harbored my nightmares.

However, I am keenly aware of the propaganda the this saga stands for... mostly motivated by the mighty dollar. I am a little disgusted by the chatter that I heard among women, young ladies and children before, during and after the film...

Putting that aside, I am completely intrigued by the beauty within the ability to capture unconditional love and loyalty captured by Stephanie Meyer in her imagination. I appreciate the awesomeness (is that a word?) within the world of monsters that is created by Stephanie in the twilight saga.

Am I a Twi-Mom? ...Not by a long shot. Am I a little twisted for being enamored by someone 20 years younger than me? ...It isn't the actor that intrigues me, it is the immortality, pain and story behind the character, so no. Do I think there are lessons interwoven within? ... Absolutely!

In a world full of corruption, pain and deceit... we could take some lesson by the Cullens in their unconditional loyalty, love and companionship. Imagine how different the world would be if we all embraced our own inner demons to support our family and loved ones to the extent in which they do for theirs.

Friday, June 18, 2010

Cell Phones: Luxury or Need?


We are changing cell phone plans and I had this great idea... close the first and post pone the second as long as I can to see how long we can go.

Yes, my primary motive was saving money... We are still recouping from hubby being out of work for 6 months after being downsized right before the holidays.

But, as I thought about it, I started wondering if the controversial frequencies they emit really affect our health & well-being and do they pollute our air & environment? As you know these are the thoughts that keep me up at night.

Then I started wondering, if the cell phone tower or the "phone company" building that was next to the building I worked when pregnant with Sahara, could have contributed to the infantile autism? Purely based on the energy model... it most certainly is probable.

Of course there is also my consideration that the age of industrialization is doing more global harm then good. And I am talking on a spiritual, physical and emotional level.

Industrialization has introduced more pollutants in our environment than ever before (BP oil spill case in point). It has torn families apart as they moved away from family farming to the city life. We have left our elders who helped us raise and guide our young children... now strangers turned childcare providers are caring for our kids.

I could go on... but you get the point.

Back to the cell-phone issue... My big question was can we do without this modern day luxury that is now viewed as a need?? Is it possible in the 21st century to forfeit something that we have created the construct of necessity for?

After all, this is precisely the experiment I did with cable TV 5 years ago. And, yes, we still are cable free... Instead of television, we now play games, go to parks, read books, and nurture our bodies, minds and relationships naturally.

Well, 4 weeks is a far cry from 5 years... but, we are on week 4 of no cell phones and I don't miss it (other than the Long Distance calling). I miss calling my mom anytime. Especially since I can't just hop in the car and drive to her house... she lives 3 hours away.

Of course my IT hubby is probably going insane. He has had phones attached to the hip for years... I would think not being at the beckon call of others would be refreshing to him. He says he misses not being in touch with me and the girls. That is valid. If there is an emergency we are no longer connected like we were with the phone.

I presume that that is our biggest hurdle. What if Sahara gets lost in a crowd or what if there is an emergency when we are in the community... what do I do?

And now that we are in the height of tween-dom with Emily, we have promised her that when we order our new phones, she is to get her own. Not because we want her to be hip, but for the same reasons I think we need one. Remember the dime our mothers used to give us when we went out with our friends, "If you need anything call me!"

Have you noticed phone booths are a thing of the past?

So, I am on the line... now pun intended. Do we go another 4 weeks of my experiment or do we bite the bullet of the industrialization age and buy the new phones and plans.?

Saturday, June 5, 2010

Oil Spill, Meditation and Eradication

The oil spill in the Gulf of Mexico is going to impact our planet, children and grandchildren, ecology, economy, etc. for centuries to come... that is if we survive it at all!! I watch videos, view pictures and read story after story; and my heart aches for our planet and mankind. I can’t help but worry about what devastation this will behind. I pray, but I am not sure that is enough.

I try not to focus on the obvious detriment of the situation. I firmly believe in the law of attraction and know my thoughts can and do create my reality. So, I try to meditate and focus on purified waters, a healthy marine habitat and a repaired oil tank. I figure that if the scientists and engineers who are armed with technology cannot fix the massive oil rig tank, then surely our thoughts can.

Well, I have to admit that is even hard for me to ascertain. I try, but I keep returning to thoughts of destruction and greed. I cannot help but to beg the power and money hungry individuals in charge to get off their duff and do something about this before it kills not only the planet, but the people who inhabit her too!! Stop defending Big Oil and take action!!

I feel like my pleas are met on deaf ears. I contemplate that if the powers to be can make vulgar statements about the oil spill and not take proper action to remedy the situation, and then it is very possible that the same greedy bastards could be making vulgar statements to discredit concerned parents and deny vaccine injury while continuing to pump that toxicity into our bodies? Sadly, this makes me feel validated. Sadly, this is probably close to the truth.

We live in a corrupt society where money and power make us do things that are incomprehensible. We turn the cheek when it doesn’t directly affect us or when we are seemingly removed. But, I have to say that we are not removed from either of these scenarios. Our children are being vaccine damaged as well as poisoned by toxins and pesticides in their foods as well as in their toys. Just this week alone 2 children’s items were recalled for containing cadmium… Miley Cyrus brand Jewelry at Walmart and Shrek glassware at Mc Donald’s.

And yet, we think it to be so farfetched that vaccines might contain harmful ingredients? Another story surfaced this week about a congressional committee that is investigating what they are calling a ‘phantom recall’ on Johnson and Johnson division, Mc Neil’s, Motrin. Apparently, the company outsourced contractors to have individuals go into stores and buy the entire product on the shelf to prevent a nationwide recall.

There are some tainted business practices occurring and it is mankind that is paying. Of course, Sarah Palin would like to blame the ‘Radical Environmentalists’ for the recent Oil Spill, but we know better. It is a world full of greed and this too shall bite us in the ass. This spill will effect far more than the Gulf. It will affect the entire mother earth and her inhabitants. You know I think she will survive… but not without causalities. Mankind has been eradicated before, and we are not too far from it again. We are but a mere virus on her and her immune system is about to eliminate us.

I pray that I am wrong for our sake, for our children's sake, and for the sake of this planet that gives us life.

Saturday, February 13, 2010

Stoned and Unemployed


My husband was downsized in October. If you haven't heard, the employment front is not a positive outlook these days. Since there are hundreds (literally) applying for the same job, the employers have raised the bar on expectations and credentials. Being able to cherry pick every candidate that is chosen to actually come in through the door for an interview has left many frustrated and dependent on unemployment benefits.

Families, like ours, are struggling across America. Since I currently stay home with the children and head my daughter's treatment for a diagnosis of autism, we have been left without insurance. When Cobra was offered to us it seemed unreasonable, yet alone unattainable when we were going to be surviving on unemployment. Frankly, we hadn't used medical services for ourselves in the past 15 years, so we were not concerned much. We would continue taking care of ourselves as we have and hold out until he found another J-O-B that would offer benefits.... but of course Murphy's Law must rear its ugly head in desperate times...

Eleven days ago I was walking through the house when I suddenly had a sharp pain in my back. I initially thought that it must be a tight muscle from laying on the couch for the past two days with a head-cold.... until I ended up rolling on the bed with pain as intense as back labor pains!! When the words, "Call an ambulance!" flew from my mouth the instant expression on my husband's face said it all. Certainly, if I was asking for medical intervention it must be serious... then I saw the wheels turn and he started to pace, "We have no insurance.... F@#K!!"

...Yes, hundreds of thousands invested into the health care system and we were left facing a crisis with nothing!

As soon as the paramedic saw me, he uttered the dreaded words, "Kidney stones." Being the overachiever that I am, my body tried to rid 3 stones at once with a 6 millimeter one heading the way causing a blockage in my ureter. The CAT scan uncovered that I had another 5 stones in the kidney ranging from 2-8 millimeters.

Two days later I was in surgery, but not after we had to fork up a $5oo deposit to secure our slot on the schedule, "This is the generous self-pay option we offer." Generous for who? Certainly the Hippocratic Oath did not mean much in the private sector. (Did you know that most medical schools do not even require this oath?) Not seeing any other option we paid the money to have the urologist put in a stent to push the stone back into the kidney and to open the kidney and bladder to allow the urine to flow without obstruction.

Several days later the Kidney Stone Center called to pre-register me for Ultrasonic Lithotripsy; the use of high frequency sound waves to pulverize the stones. Of course we had to tell them we didn't have insurance. The pause on the phone followed by the statement, "Oh, you're a self pay... you need to talk with Verina," created a cringe in me. Why was I so embarrassed??? It wasn't like we eagerly volunteered to have my husband downsized in the middle of a suppression nor did we sign up for me to stay home because of the elephant in America's front room called Autism.

The financial advisor reassured me we didn't need the whole $7170 up front.... but, that isn't what was bothering me. It was the thought of accuring another debt and feeling responsible for this financial burden my family was facing. I felt so incredibly guilty... didn't I take care of myself good enough? I had this incredible sense of blame about these darn stones in my kidney...

I still have 2 days to go until the lithotripsy and will have to keep the stent in for an undetermined amount of time to prevent obstruction. Honestly, the various medications that I have been on frighten me more than any of the procedures. Having had a clean system for 15 years, I am sure my body is freaking out about the differing chemicals surging through me. So, I guess I will be doing that liver and/or body cleanse I have been putting off sooner than later.

Of course, I have researched kidney stones, natural cures and the like. The obvious finding is that I should be drinking, yet, even more water than I do. Mineralized water should be drank moderately as it contains calcium. Cranberry juice is another fluid that will help clean out the kidneys.

Some of the recommendations are steps we have already taken to improve our health; reduce sugar, soda, caffeine, alcohol, and refined foods. It is also recommended that you avoid animal byproducts, dairy, cheese and oxalate containing foods (beets, spinach, nuts, black tea, chocolate, beans, and strawberries). Oxlalate foods will be hard for me to eliminate as I love all of the items on the list!

Alternative health options always improve the function of the body, which might be why my body decided to attempt to excrete these stones in the first place. Accupuncture, chiropractic, reflexology, massage, reiki and meditation are all modalities that have reported beneficial health benefits.

For now, I have reduced the meds down to the smallest amount I can tolerate and still have the pain manageable, the children are pretty calm considering they are completely out of their routine and my husband is still holding strong even though I am sure he is on the brink of exhaustion. However, I presume this, too, will pass (no pun intended).








Tuesday, September 8, 2009

ATTENTION FRANKLIN COUNTY, OHIO RESIDENTS AND RIDGEWOOD PARENTS!!

Verizon Wireless and the resident of 4243 Dublin Road have taken action to request a variance to allow for the construction of a 120 foot telecommunication tower facing and residing next to the driveway loop where we wait in line to pick up our children at school and in close proximity of the playground.

The applicant is proposing to lease a 40' by 60' area which will contain a 38' by 58' fenced area where a telecommunication tower and tower equipment will be located. The fence will be 8' in height and constructed of wood. The proposed tower is 120' in height. Plans submitted indicate that the tower will also have the capability of colocating two additional carriers. Access to the site will be provided by a 20' access and utility easement.

WHY SHOULD YOU BE CONCERNED?

*There have been no long-term studies that idicate the health risks from exposure to low-level Radio Frequency/ Microwave (RF/MW) Radiation that is emitted from cell phone towers. *This industrial monstrosity will forever scar our charming school community.
*Homes devalue on average 15% depending how close a homeowner is to a tower.

WHAT CAN YOU DO?

*Construct, sign and mail the letter below immediately. The letters must arrive before the September 21st meeting!
*Attend the meeting on September 21st to voice your opinion to the Franklin County Comminssioners!

The time to stop the construction of the cell phone tower is now!

The meeting to decide whether to buld the cell phone tower in Monday, September 21, at 1:30 pm at the Franklin County Courthouse located at 373 South High Street, 26th floor. Case #VA/CU-3668. The matter is decided by the Franklin County Economic Development and Planning.

MORE DETAILS

http://www.franklincountyohio.gov/commissioners/edp/
Go to the calendar and select August 17.
Select Meeting Materials.
Scroll down to Case VA/CU-3668 to view maps and related materials.

MORE INFORMATION REQUESTED

If you have links or information connecting RF/MW Radiation with health hazards please forward to me ASAP. And forward this to every one you know in this county!! Thank You!!

SAMPLE LETTER

Matt Brown
Franklin County Economic Development and Planning
150 S. Front Street
FSL Suite 10
Columbus, Ohio 43215

Dear Mr. Brown,

We are strongly opposed to the placement of a cell tower within our neighborhood at 4243 Dublin Road. The required acreage for a cell tower is 2 acres. Mr. Rob Hinton's propery is only .98 acres. This alone should be enough to prevent the construction of the proposed tower. His property is surrounded by a dense population of homes, landscaping, and an elementary school. The cell tower would further lower property values at a time in our economy when we do not need this to happen.

Although the data in inconclusive, we are concerned about the RF signals emitted from a cell tower in our neighborhood and this close to a elementary school and its play ground. We request that the application by Verizon Wireless for a conditional variance allowing construction of the proposed tower be denied!

Respectfully,
(your name)

Tuesday, July 7, 2009

Searching for Biological Autism Answers: Dead End!



Even after the neurologist maintained that a chromosomal deletion was insignificant, he recommended we talk to the genetic department to get more information on the findings. We waited months with sleepless nights to get in to see him, finally we were there.

The intake personnel asked why we thought we were there to see the geneticist, "Our daughter is diagnosed with autism and the blood work showed a chromosomal deletion, dad has the same deletion, mom has a different one, and the neurologist thought we could learn more about this from the geneticist."

Without hesitation he replied, "You will learn that these deletions are insignificant and not related to the autism. And, although, we know that autism is a biological disorder not an environmental one, we do not see any evidence of genetic causation in your daughter’s case."
My mind started mulling over these words…

‘Biological disorder’….
‘Not environmental’….
‘Do not see any evidence’…

He proceeded to take a thorough 60 minute case history. As we discussed our family history, I started to relax; somehow having the medical model finally listen to our story seemed to be relief in and of itself. But then, we had to wait another 45 minutes before the geneticist came in to see us. At some point I said to my husband, "If there is no evidence of biological component here… why are they wasting our time?"

Both kids were restless, hungry, and ready to bolt as the door opened. "Hi, Mr. and Mrs. Richardson…. I am ‘Dr. Geneticist’…. why do you think you’re here today?" Again, I explained what I knew of the deletion and his reply shocked me, "Over 80% of the time I can look at a child’s profile and determine the cause of the autism. We don’t see any of those indications with your daughter’s case; however, even though we know that autism is biological, we haven’t been able to know precisely where it is coming from. We are doing continued research to determine how it is biological and which specific gene it resides on."

WHAT?!? How can the geneticist say that there is autism is 80% biological/genetic but not have scientific evidence where the ‘autism code’ resides?

I craved validation, "If you are not finding any biological component linked to my child’s condition, is it safe to say that her condition is related to environmental toxins?"

Prepare yourself for what we heard!

"Some individuals are blaming environmental factors. I have not seen enough evidence that indicates that this could be valid…. There is no link between autism and environmental toxins." He continued to discredit the alternative venues of treating autism like chelating, GFCF diets, and other DAN! Doctor protocols. He even went as far as to state, "Chelation is killing kids while the people recommending it are making gobs of money."

I couldn’t believe my ears, but then again, his science and research is funded through this paradigm (psst…. Guess who’s making gobs of money too?). But to outright attack it befuddled me. I admit I question medical efficacy, but I also invite debate so that we might learn more about both approaches. It is when they find unison that maybe, just maybe, we will begin to progress towards finding a cause and more importantly find a cure.

Many are making ‘gobs’ of money off our children’s deficits from both paradigms. But, right now, my reality is spent in the sleepless nights wondering how we are going to pay for the co-pays, huge deductible, and the portion of the bills that the insurance company hasn’t deemed medically necessary.

The thousands of dollars in bills that we have accrued in the past four months is money that could have been utilized in a much more productive manner. The inconclusive tests results, countless appointments where the physician told us we are already doing everything they’d recommend and the referrals to additional hospital/medical services have racked up a bill and wasted valuable time that could have been utilized towards the recovery of my daughter’s autism.

Monday, July 6, 2009

A Letter to President Obama:Autism Advocate Requests Your Attention







Dear Mr. President,

I can’t post-pone this letter any longer. There is a pestilence occurring among our children in America and we need your help!

My daughter was diagnosed with Autism Spectrum Disorder (ASD) last Halloween. Progress is slow, but steady. We do feel restricted in the process of addressing her needs due to the law not requiring the inclusion of autism on insurance policies, the narrow-mindedness of some deemed professionals in the industry, and the lack of financial backing.

Mr. President, many parents and professionals have differing opinions about how to address the needs of these children and what causes ASD. I am sure you are aware that this is a hot topic and tempers flare. I am not going to address the causation in this letter, but am going to acknowledge that I quietly (and often) wonder if the two injections of the RhoGam inoculations mandated on me during pregnancy caused our daughter’s disability.

I am going to also point out that since implementing the medical model during the past few months our medical bills have surpassed our personal budget. Unfortunately, I think that Autism has become an industry rather than an epidemic. It infuriates me that many are getting rich off of the woes of our children. But, this isn’t about me and the need to find someone to blame. I have made peace with our circumstance, and thank God that he entrusted me with this challenge. (He must have recognized something amazing within our family construct to bless this family with such an amazing journey.)

There are others I am most certain that have been called to action by a higher order as well. For instance, Angela Warner—a military mom of four (2 with ASD), is an inspiration to each of us on this journey. Her drive to alert you, Mr. President, and the mother of your children, Mrs. Obama, about this epidemic and how it is affecting our military families is inspirational.

Men and women who have committed their lives to protecting ours, are fighting an even bigger battle and dealing with even greater grievances on their home fronts as well. I am not going to pretend to understand what is like to be a military family and face autism, this you can learn by accepting her invitation to meet in early October. Until then, you can read more about her bravery and endeavors at http://www.autismsalutes.com/.

Age of Autism, a daily web newspaper of the autism epidemic, recognizes Angela as an Air Force spouse, mother, and advocate for our children. Today, I am asking that you encourage Michelle Obama to meet with Angela to have a discussion about what American families are going through.

It won’t be long before the 1 out of 150 kids with ASD become of age… that will bring its own set of challenges. If we don’t act now, more money and resources will be required to meet the activities of daily living for this fast growing population. I encourage you to help the children of today for a better future tomorrow. I, personally, have signed an open letter to you on the web encouraging you to look into the environmental factors that could be contributing to this debilitating disorder.

Thank you for your action!
Susan Richardson
Mother, Wife & Autism Advocate

Friday, June 12, 2009

Ohio Votes For Autism Inclusion: Coverage for ASD!


I was running errands yesterday afternoon listening to talk radio… something I like to do when the kids aren’t in the car with me. It tends to help me understand both sides of political agendas, so I can draw conclusions that are not based purely on political affiliation but on substance; and this day was no different.

So as I neared the post office, I was listening to one man’s opinion, and a strong one at that, about how wrong Obama is with his Health Care Reform stance. He was making good arguments, but the chatter in my head pleaded for someone to recognize that regardless of what we did about Health Care Reform, we had to do something. What we are doing isn’t working, am I not the only one who sees this?

I had fuel added to my fire about the insurance game when my daughter, whom is diagnosed with Autism Spectrum Disorder, had a claim denied when she was 3 years old. She wasn’t speaking at all at the time and her medical doctor kept saying, “Well, some kids just don’t talk until they are 6.” But, I kept pleading something is wrong. She won’t even look at me when I call her name, she doesn’t budge when we make loud noises behind her, something is wrong with my baby… please do something, help her!

After a lot of persistence, we got doctor orders to rule out hearing loss as the first step. I was relieved and anxious that we would finally see if this was the culprit for her unresponsiveness and lack of speech. The tests came back negative and she was labeled with the diagnosis of “Speech Delay”. Whew, we were relieved that it wasn’t hearing loss, but...

The insurance company said they would not pay for the tests based on the diagnosis. I tried to calmly explain that we thought she was deaf and we were trying to rule that out… I think that was the first time I truly experienced rage. Here I had this non-verbal 3 year old who was non-responsive to noise, and I was being told it was not medically necessary to check her hearing. The insurance rep even told me that if she had had speech previously and lost it, they would have paid for the testing. See, insurance companies will pay for rehabilitative services, but not habilitative services.

This was insane! I just wanted to help my child, and even though I paid my high premiums each and every month, they weren’t going to help my little girl. Didn’t they understand that the quicker she got help, the less it would cost down the road?

But, yesterday during a commercial break, I started to whoop and holler. I am sure the old woman in the car next to me thought I belonged to the Looney Bin, but I couldn’t contain myself. I was animated, excited, and wanted to express myself.


“I just don’t understand how they get away with it. Why does the law let health insurance companies discriminate against children with autism?”


I couldn’t believe my ears… OH MY GOOD GOD had listened to my pleas!!


“Families are going broke paying for medical services their children desperately need.Cancer is covered. Diabetes is covered. But not autism – even though autism has become more common than most childhood ailments combined.”


Disbelief, Adrenaline, Hope burst through my essence… Something I have personally ranting on about for the past three years was on conservative radio for everyone to hear. This was a monumental moment and I was praising God as I heard the words sponsored by Autism Speaks encouraging Ohioans to call Ohio House Speaker Armond Budish to advocate for our children.


“Speaker of the House Armond Budish has led the effort to end the terrible discrimination against people with autism. The Speaker hopes to leave a legacy of care for all of those who suffer with autism.”


Our children ARE discriminated against, and it is about time the world knew about it!!


“Please call Speaker Budish today and express your support as he defends his autism insurance reform provision in the budget negotiations with the Senate. Call Speaker Budish at (800) 282-0253… that’s (800) 282-0253.”


I called my husband before the commercial was over; he thought we had won the lotto by the way I greeted him. You know, I would take this bill passing over the lotto any day. Money is controlled by those with political power, but my daughter getting the care she needs, the care she deserves has far more value.

Sometimes, I feel disbelief that this is even a topic of negotiation; 1 out of 150 children experience ASD and we have to negotiate whether or not the treatments that run in the tens of thousands, the tests that have comparable price tags, are in the state budget?

“Now is the critical moment for the people of Ohio to speak up in support of individuals with autism and their families,” said Elizabeth Emken, Autism Speaks Vice President of Government Relations. “We urge all Ohioans to call Speaker Budish, a true champion for the autism community, and voice their support for his effort to end insurers’ blatant discrimination against children with autism. Ohio is closer than ever before to joining the growing number of states that have passed legislation serving to right this terrible wrong.”

Don’t hesitate call Speaker Budish today (800) 282-0253!!

Summary of Ohio Autism Insurance Reform Bill:

House Bill 8 - Sponsored by Representative Ted Celeste (D-24) and Representative Nancy Garland (D-20).

Requires private health insurance companies to provide coverage for the diagnosis and treatment of autism spectrum disorder.

Coverage of treatments will be provided when prescribed, provided, or ordered for an individual diagnosed with autism by a licensed physician or a licensed psychologist who determines the care to be medically necessary.

The bill includes coverage of the following treatments: Diagnosis, Habilitative or rehabilitative care, Pharmacy care, Psychiatric care, Psychological care, Therapeutic care, counseling services, and Applied Behavior Analysis (ABA).

The bill defines "medically necessary" as a services that is based upon evidence; is prescribed, provided, or ordered by a health care professional licensed or certified under Ohio law to prescribe, provide or order autism-related services in accordance with accepted standards of practice; and will or is reasonably expected to do any of the following: prevent the onset of an illness, condition, injury, or disability; reduce or ameliorate the physical, mental, or developmental effects of an illness, condition, injury, or disability; or assist to achieve or maintain maximum functional capacity in performing daily activities, taking into account both the functional capacity of the individual and the functional capacities that are appropriate for individuals of the same age.

The bill applies only to fully-funded individual and group health plans and multi employer welfare arrangements governed by state law.