My Morning Rant

I was on Facebook this morning and started to write a morning greeting in response to a post by a local autism center,"

"The latest British Medical Journal paper about autism and vaccines, which provides evidence that the initial report linking autism and vaccines was fraudulent, and the media coverage that ensued, miss an important point…"

...and since my thoughts wouldn't fit the character limit... I brought it here.

Firstly, I was stunned to see an autism school post something so controversial. I do think their job should be education, intervention and advocacy... and that their opinions about the autism/vaccinate debate should be removed from their public statements. (... So I thought that this post was risky.)

But, they are right about questioning the media's coverage ... because, of course, we know that the media is a great place to get unbiased information!!

Secondly, (here I go…) I think Wakefield is a scapegoat!! (Do you know he had nothing to do with our pre-autism decision not to vaccinate?) Yes, that is right we made this decision before autism was in our lives... And in case you are thinking, “See, you didn’t vaccinate and your child still has autism!” Let me clarify, that doesn't 'prove' anything... I often wonder why no one is researching maternal vaccine history... For instance, RhoGam ??

I know too many parents who have reported regressive autism, not to question it’s etiology. I do not think autism is ‘caused’ just by vaccines, and in some cases… that is precisely what I think. But, I also think genetics, environmental toxins take a role as well…

Moving on to what Really pushed my buttons… this particular post went on to quote Autism Speaks,

"Until science discovers the causes of autism and explains its dramatic increase, parents will continue to reach their own conclusions and desperately try a wide range of treatments, whether there is evidence to support them or not. The answer is not to look to the past and look for blame, but rather to look to the future. We need increased research financing directed toward rigorous science that can provide the answers that parents are looking for and deserve. Until this happens, we will continue to wallow in controversy, and people with autism and families will continue to struggle with autism on their own."

Geraldine Dawson

Chief Science Officer, Autism Speaks

New York, Jan. 13, 2011

Editorial in New York TImes by the Chief Science Officer of Autism Speaks

Let me be clear Autism Speaks does not speak for myself OR my child! I have many questions, but mostly where is all this money they raise??? ... and why (or how) should we take YOUR research seriously while you are insulting parents across the world with statements like this... how can we expect unbiased research ? We can't!

In this statement you are indirectly (no, directly) are asking for more money to fund research?? Does anyone else see this statement as exploitation?? In the first two sentences, parental desperation is address… then whap… they put their hand out!

What about the 6 digits your executives are making? Do you know many autism families have lost their homes, have gone down to one income, and are scrapping by to do what they can with what they have for their children while you sit in your fancy upstate New York office getting rich off of us?

I don't need Autism Speaks to tell me that my child is 'broken' or that my marriage is going to end in divorce or that autism is entity stalking my family... I have found a way past her label, the stereotypes, the fears... but that doesn't mean I sit back and quietly listen to this crap... stop exploiting our kids, adult friends and loved ones.

Stop paying your executives 6 digits! Stop spending more ((a lot more)) on travel and office expenses than what you contribute to autism research and family services. Then maybe you don't have to recruit parents on the front line to go out to collect donations and walk... when they should be focusing their attention on their child.

Finally, take the dollar sign of my child's head!!

Let me conclude with this thought...

Whether you believe vaccinations is the trigger for your loved one's autism or whether you embrace nuero-diversity... let's unite to empower the global autism community. It doesn't have to be a heated debate of one side vs the other.

In fact, I have found common ground with both sides. I do believe pre-natal vaccines contributed to my child's condition, but I also accept that she is phenomenal.. autism or not. I will continue to support her and offer her the tools she needs to reduce her challenges. I have found blessings disguised as autism...

But, autism doesn't define who she is... she is Sahara Grace, a fantastic 6 year old exploding with possibilities.

As for Autism Speaks... shame on you for exploiting our community.

Mental Illness does not equate Evil!!

I was surprised to see that nobody else was bothered by Sarah Palin’s use of the word “evil” to describe a mentally ill individual in her recent video. Although, I am not surprised… that would not have caused such an up roar among the media, journalists, blog-sphere and people as the phrase “blood libel”.

Of course they [the entities listed above] ran with the “blood libel” reference… okay my instincts say to give her critics that, but I just don’t know enough about Jewish history to judge that one way or another. And I won’t pretend to talk about something I know nothing about.

However, as an individual who has spent most of her professional career and adult life counseling mentally ill adults and children … I found the description of this mentally ill person offensive.

Evil is the intention of causing harm or destruction, specifically from the perception of deliberately violating some moral code. ~ Wikipedia

If we use this definition than we are to assume that the individual didn’t suffer from mental illness… but I argue that a sane person would not ‘deliberately’ open fire on a Congresswoman and others gathered in a public assembly. It is the casual use of the word evil associated with mental illness that makes families and individuals ashamed of having mental illness among their own: The Denial of Mental Health Issues Rages through Main Street, America.

Just before the Tucson tragedy, I asked a Facebook Group to send ‘prayers’ and ‘healing’ to an individual who committed an unthinkable crime against a young girl and her family near my home. The group of healers were outraged that I would request them to send healing to this perpetrator.

I reminded them that this perpetrator, like the gunman in Tucson, is someone’s [mentally ill] son, grandchild, brother, and friend. Jesus walked among the sinners and offered them healing… who are we to judge who needs prayers and who doesn’t? Just because I offer prayers for someone doesn’t mean I support their actions. It means I recognize that they need our prayers and the recognition of their mental condition so that they too can receive the help they inherently deserve.

But of course if we view them as an “evil” persona… this exempts our responsibility to help them. Responsibility? Yes, I believe it is part of our moral conduct to help individuals who have mental illness.

Somewhere on Main Street America a mentally ill person is committing an unthinkable crime; it could be someone we personally know… now is the time to take the responsibility to offer outreach to that person and their family. And maybe, just maybe, if the masses see us do that… then other families will get the help they need before the unthinkable happens.

Mental Illness does not equate Evil!!

As for Sarah Palin, I think she is a pitiful pawn in a Big Boys’ Club. But her political tactics of cross-hairs on a map did not cause this person to go shoot US Rep Gabrielle Giffords and other innocent bystanders…. mental illness did.

However, we cannot prove that it didn’t energetically influence the violence that day or somewhere else on a backstreet in America.

I do not let my children watch violent tv shows or cartoons for the same reason. Bottom line… Violent images promote violence. Again, as a collective global community we need to take responsibility. But then again, our nation is good at the blame game and not taking responsibility.